About Narcolepsy

Narcolepsy is a rare, chronic, debilitating neurologic disorder of sleep-wake state instability. Narcolepsy impacts up to 200,000 Americans and is primarily characterized by excessive daytime sleepiness, cataplexy, and other manifestations of REM sleep dysregulation, which intrude into wakefulness. In most patients, it is caused by the loss of hypocretin, a neuropeptide in the brain that supports sleep-wake state stability.

This disorder affects men and women equally, with typical symptom onset in adolescence or young adulthood; however, it can take up to a decade to be properly diagnosed. Narcolepsy can cause significant burden on patients and their families, affecting their ability to perform routine tasks, limit achievement at school and work, impact social relationships and cause impairment in overall quality of life.

2018 survey of healthcare providers & people living with narcolepsy highlights the need for more education & new treatment options.

0%

agreed the disorder
is life-changing

0%

agreed they never feel
like a "normal" person

0%

agreed life
is a daily struggle

0%

agreed it has affected
important moments
in their lives

Only

0%

of people living
with narcolepsy
surveyed reported
having cataplexy

And

0%

reported knowing
little to nothing
about cataplexy

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