Support of Patient Organizations

Harmony Biosciences is committed to compliance with Industry self-regulated codes, including the EFPIA Code of Practice on Relationships Between the Pharmaceutical Industry and Patient Organizations and the ABPI Code of Practice for the Pharmaceutical Industry. Harmony Biosciences provides funding support to Patient Organizations in accordance with applicable laws, codes and country specific disclosure requirements.

In keeping with our transparency obligations, Harmony’s support for European patient organizations is disclosed here.

2024
Country United Kingdom
Name of Organization Funding Purpose Funding Support Amount

International Prader-Willi Syndrome Organisation (IPWSO)

Name of Organization Funding Purpose Funding Support Amount

Prader-Willi Syndrome Educational Outreach program

Name of Organization Funding Purpose Funding Support Amount

GBP 5,000

2024
Country Name of Organization Funding Purpose Funding Support Amount
United Kingdom

International Prader-Willi Syndrome Organisation (IPWSO)

Prader-Willi Syndrome Educational Outreach program

GBP 5,000

2025
Country Spain
Name of Organization Funding Purpose Funding Support Amount

Fundación para la Investigación en el Síndrome de Dravet

Name of Organization Funding Purpose Funding Support Amount

Sponsorship of the European the Dravet Syndrome Conference 2025

Name of Organization Funding Purpose Funding Support Amount

EUR 6000

Country United Kingdom
Name of Organization Funding Purpose Funding Support Amount

The Fragile X Society

Name of Organization Funding Purpose Funding Support Amount

Sponsorship of the Fragile X Society Edinburgh Conference

Name of Organization Funding Purpose Funding Support Amount

GBP 2,500

2025
Country Name of Organization Funding Purpose Funding Support Amount
Spain

Fundación para la Investigación en el Síndrome de Dravet

Sponsorship of the European the Dravet Syndrome Conference 2025

EUR 6000

United Kingdom

The Fragile X Society

Sponsorship of the Fragile X Society Edinburgh Conference

GBP 2,500