Patients at the Heart Program
Harmony’s Patients at the Heart Program
Harmony’s Patients at the Heart program was developed to underscore our ongoing commitment to support the comprehensive needs of people affected by sleep disorders. Since its launch in 2019, the program has funded more than $200,000 in awards toward innovative patient-centric programs.
In 2021, $75,000 in Patients at the Heart funds are being awarded to not-for-profit organizations that are working to support and address the challenges of people living with sleep disorders and rare diseases who experience excessive daytime sleepiness (EDS).
We are proud to announce our 2021 awardees:
ANGEL Aid
Narcolepsy Caregivers Retreat
Creation of a six-week virtual Caregivers Wellness Retreat with a focus on mental health, self-care, and connection for up to 25 caregivers of people with narcolepsy.
Who Am I? Graphic Novel Workshop
Creation of an art therapy program designed to foster emotional life skills, self-awareness, and a sense of connection for people living with narcolepsy and/or excessive daytime sleepiness (EDS).
Prader-Willi Syndrome Association (PWSA) | USA
Disordered Sleep: A Deep Dive for Parents and Practitioners
Creation of free and accessible tools and resources informed by focus groups and PWS Sleep best practices, as well as a PWSA | USA Virtual Sleep Summit.
Click here to read our full 2021 press release.
Applications were reviewed by members of Harmony’s Corporate Affairs, Compliance, Legal, and Medical teams and evaluated based on a standard set of review criteria, which included the quality of the application, creativity of the solution, and the organization’s infrastructure and past program successes.
For questions or more information, feel free to contact patientsattheheart@harmonybiosciences.com.
Stay tuned for our next Patients at the Heart program announcement in Q2 2022!
“Our goal is to improve the lives of people living with sleep disorders and their families, and we hope by supporting innovative programs, we can make a positive difference for these communities.”
Cate McCanless, SVP, Corporate Affairs and Public Policy, Harmony Biosciences
“Patients at the Heart enabled Project Sleep to adapt our programming to better foster community and connection virtually during the pandemic when isolation was a major concern. The funds allowed us to increase story-sharing opportunities and to create a fantastic new video series and social campaign highlighting healthcare providers living with narcolepsy. Thank you to Harmony for providing critical and meaningful support during such a challenging year.”
Julie Flygare, President & CEO, Project Sleep
Harmony does not provide grants to individuals unless an individual is acting as sponsor investigator of an investigator-sponsored study/research. No grants, sponsorships, or charitable contributions are offered or provided in exchange for endorsing or prescribing Harmony products or for a commitment to continue prescribing Harmony products. In other words, any quid pro quo is strictly prohibited.
Any funding provided by Harmony will be in compliance with all applicable laws, rules, and regulations.
