Patients at the Heart
Patients at the Heart Program
Harmony Biosciences' Patients at the Heart program underscores our ongoing commitment to support the comprehensive needs of people affected by rare neurological diseases.
Patients at the Heart awards are presented to nonprofit organizations that are working to support and address the challenges of people living with sleep disorders and rare neurological diseases who experience excessive daytime sleepiness (EDS).
Harmony Biosciences has two open application periods for Patients at the Heart in 2023:
- February 28 – May 26: Notification sent to awardees by July 2023
- June 1 – August 25: Notification sent to awardees by October 2023
- Application Document
- Comprehensive Budget Document
- If applying from a 501(c)(3) organization, kindly include your 501(c)(3) tax-deductible letter and your organization's most recent Form 990
- Programs that support persons with rare neurological diseases to live fuller, more engaged lives
- Programs that address the psychosocial challenges faced by persons with sleep disorders or rare neurological diseases who experience EDS, or their caregivers
- Programs that improve the overall support of family members of persons living with rare neurological diseases
- Creation of educational materials to increase awareness and decrease time to diagnosis of rare neurological diseases
Funding Application Information
- Description and type of organization
- Program title and summary
- Key deliverables and program milestones
- Evaluation plan
- Communication and results plan
- Financial information/detailed budget for project
Harmony Biosciences will request a program update one year after award.
- Applicants must be a 501(c)(3) or similarly credentialed nonprofit organization
- No minimum funding amount; maximum funding request per application: $50,000
Incomplete proposals will not be considered for review.
Applications will be reviewed by a cross-functional team of Harmony Biosciences employees. Proposals will be evaluated based on a standard set of review criteria, which will include the quality of the application, creativity of the solution, and the organization's infrastructure and past program successes.
Harmony Biosciences cannot fund projects that will provide a benefit to Harmony Biosciences other than the "incidental and tenuous" benefit that Harmony Biosciences receives in the form of goodwilI, name recognition, and publicity.
We wilI not consider proposals that include any of the following:
- Programs that reference Harmony Biosciences products or product candidates, or seek to measure the impacts of Harmony Biosciences products
- Organizations that discriminate on the basis of age, race, sex, religion, sexual orientation, or disability
- Funding for events or programs that have aIready occurred
- Political organizations, campaigns, or direct lobbying activities
- Religious organizations or groups whose activities are primarily sectarian in purpose
- Programs or proposals that supplement an organization's income or offset its expense in a manner that benefits, directly or indirectly, a healthcare provider's compensation
Harmony reserves the right to withdraw this program prior to selecting and making award decisions.
Harmony reserves the right to use awardee organizations and winning programs in press materials.
Harmony reserves the right to partially fund program requests.
Applications and support materials must be submitted in English.
Yes. Each program application must be submitted separately.
Yes. Collaborative proposals between individuals and/or advocacy/community groups and/or academic institutions and/or medical societies are allowed.
Yes. Local, regional, and national programs will be considered. At this time, the Patients at the Heart funding will be awarded to programs in the U.S. only.
No. There is no guarantee an awarded program will receive funding in the future, even upon the continuation of a proposed program and beyond the proposal description.
No, Patients at the Heart does not fund activities that have already occurred but will consider support for ongoing and existing programs.
Please address all questions regarding your application to patientsattheheart@harmonybiosciences.com.
2022 Program Awards
Over the past four years, Patients at the Heart has funded more than $325,000 in awards toward innovative, patient-centric programs. Programs currently being supported include:Hypersomnia Foundation
#UNITE Beyond Sleepy – An Interactive Forum for Peer-to-Peer Relational Connections
Establishing the #UNITE program to foster peer-to-peer support for individuals with hypersomnia disorders to connect and share personal challenges.
KLS Foundation
Strategic Communications for Awareness
Increasing outreach and communication with the Kleine-Levin syndrome community to raise awareness of the condition, build community and support systems, and facilitate initial patient participation in medical studies. The group aims to complete these goals through the development of resources and support opportunities, website and social media updates, and improvements of their patient registry.
Muscular Dystrophy Association
MDA Access Workshops: Access to Coverage
Expanding MDA Access Workshops, a self-paced community learning and support series focused on increasing community health literacy, empowerment, and self-advocacy. MDA will be adding a new program, Access to Coverage, that will provide an overview of obtaining insurance coverage for medical equipment and assistive devices.
Prader-Willi Syndrome Association I USA
Caregiver Retreat
This event will offer up to thirty parents/caregivers an opportunity to attend a three-day, two-night event providing parents/caregivers with new skills to provide care for their loved one with Prader-Willi syndrome and develop their own self-care practices, including meaningful in-person peer connections.
PWN4PWN
TechSoup
Providing people living with narcolepsy or idiopathic hypersomnia six months of education in the form of webinars and forums in service to PWN4PWN's advocacy mission.
Click to learn more about what programs Patients at the Heart supported in 2019, 2020, 2021, and 2022.
“Combining empathy with innovation to improve the lives of people living with rare neurological diseases is a mission that drives everyone at Harmony Biosciences. We are pleased to support a diverse group of organizations that have each developed new and innovative patient-centric initiatives to help address the unique needs of people living with rare neurological diseases, or those in a broader sleep disorder community.”
Cate McCanless, Chief Corporate Affairs Officer, Harmony Biosciences
Harmony does not provide grants to individuals unless an individual is acting as sponsor investigator of an investigator-sponsored study/research. No grants, sponsorships, or charitable contributions are offered or provided in exchange for endorsing or prescribing Harmony products or for a commitment to continue prescribing Harmony products. In other words, any quid pro quo is strictly prohibited.
Any funding provided by Harmony will be in compliance with all applicable laws, rules, and regulations.
