Progress at the Heart
Progress at the Heart Program
Individuals affected by rare neurological diseases deserve equal access to treatment and care. This requires coming together as one community to address the root causes of health disparities, including race, ethnicity, gender, sexual orientation, education, income, and geographic location, to ensure that all patients with rare neurological diseases receive appropriate care.
Harmony Biosciences’ Progress at the Heart program supports novel initiatives addressing disparities and inequities in access to treatment and care in the rare neurological disease community.
Harmony Biosciences is pleased to announce the following open application period for this year’s Progress at the Heart program.
- February 26 – May 24: Notification sent to awardees by July 2024
TO APPLY FOR FUNDING, CLICK HERE.
- Click "Progress at the Heart"
- Application materials, including submission and budget form, are available via this portal
- If applying from a 501(c) organization, kindly include your 501(c)(3) tax-deductible letter and your organization’s most recent Form 990
Should you have any questions about portal navigation or specific questions about applications, please refer to the following email address:
- Community Programs: People-centered, community-led programs to improve awareness and treatment in the rare neurological disease communities and help achieve greater equality for rare neurological disease patients experiencing disparities when it comes to receiving appropriate treatment and care
- Education: General public and healthcare provider education and programs that increase awareness and decrease time to diagnosis of rare neurological diseases with an emphasis on addressing health disparities such as race or ethnicity, gender, education, income, or geographic location
- Public Health: Creation of or modifications to public policies that address health disparities
- Other proposals that help achieve greater equality within rare neurological disease communities
Funding Application Information
- Description and type of organization
- Program title and summary
- Key deliverables and program milestones
- Evaluation plan
- Communication and results plan
- Financial information/detailed budget for project
Harmony Biosciences will request a program update one year after award.
- Applicants must be a 501(c)(3) or similarly credentialed nonprofit organization
- No minimum funding amount; maximum funding request per application: $50,000
Incomplete proposals will not be considered for review.
Harmony Biosciences cannot fund projects that will provide a benefit to Harmony Biosciences other than the “incidental and tenuous” benefit that Harmony Biosciences receives in the form of goodwill, name recognition, and publicity.
We will not consider proposals that include any of the following:
- Programs that reference Harmony Biosciences products or product candidates, or seek to measure the impacts of Harmony Biosciences products
- Organizations that discriminate on the basis of age, race, sex, religion, sexual orientation, or disability
- Funding for events or programs that have aIready occurred
- Political organizations, campaigns, or direct lobbying activities
- Religious organizations or groups whose activities are primarily sectarian in purpose
- Programs or proposals that supplement an organization's income or offset its expense in a manner that benefits, directly or indirectly, a healthcare provider's compensation
Harmony reserves the right to withdraw this program prior to selecting and making award decisions.
Harmony reserves the right to use awardee organizations and winning programs in media materials.
Harmony reserves the right to partially fund program requests.
Applications and support materials must be submitted in English.
Yes. Each program application must be submitted separately.
Yes. Collaborative proposals between individuals and/or advocacy/community groups and/or academic institutions and/or medical societies are allowed.
Yes. Local, regional, and national programs will be considered. At this time, the Progress at the Heart funding will be awarded to programs in the U.S. only.
No. There is no guarantee an awarded program will receive funding in the future, even upon the continuation of a proposed program and beyond the proposal description.
No, Progress at the Heart does not fund activities that have already occurred but will consider support for ongoing and existing programs.
Administrative or Indirect Costs must be limited to 20% of Harmony Funding Request.
Funding support cannot be used for costs of travel, lodging, or personal expenses.
Please address all questions regarding your application to progressattheheart@harmonybiosciences.com.
2023 Program Awards
Now in its third year, Progress at the Heart has supported 15 initiatives, including the following programs:
American Academy of Neurology (AAN)
Health Care Equity Program
The annual Health Care Equity Program enhances 10 neurologists’ knowledge of disparities and promotes more impactful neurology and healthcare policies. Programs include meetings, educational workshop sessions, and individual projects to help close health disparity gaps.
Geisinger Health Foundation
Wake Up and Learn
Wake Up and Learn virtual K-12 educational and surveillance program facilitates a culture shift towards a valuation of sleep as essential for health and removing barriers to timely recognition, diagnosis, and management of sleep disorders in school-aged children. The 2024 program will expand the video curriculum, translate materials into Spanish, and assess impact through interviews with a focus on diverse geographic, ethnic, and gender perspectives.
Rare And Black
The Restful Revolution
The Restful Revolution, an innovative pilot program, will provide support to up to five Historically Black Colleges and Universities in the Washington, DC, and Baltimore area for the 2023-2024 academic school year. Its mission is to educate and empower students to cultivate healthy sleep habits and raise awareness about sleep disorders.
- Platicamos Sueno: Engaging Community Health Workers in Sleep Health at the US-Mexico Border
This program expands upon existing initiatives at the US-Mexico border through collaboration with the Mariposa Community Health Center and their “Platicamos Salud” program to train community health workers (“promotoras de salud”) to improve access to quality care through panels, in-language educational resources, and training sessions. - QuE PASE? (“What Happens?”): Querying Everyday Perceptions About Sleep Experiences
This project empowers Hispanic and Latino families at the US-Mexico border to address sleep disorder and awareness gaps through a family-based approach. The 20 families already enrolled will have access to new programming focused on recognizing symptoms and two sessions with a psychologist focused on sleep medicine to promote overall health well-being.
The University of Utah
Nuestro Sueno: Focus Groups for the Development of a Culturally-Tailored Sleep Health and CPAP Adherence Intervention for Latino Couples
This project aims to fill the gap of culturally adapted positive airway pressure (PAP) adherence interventions for Latinos through rigorous qualitative research and feedback from patients and community stakeholders. The insights will inform the intervention’s cultural appropriateness and acceptability in the pursuit of future research.
Click to learn more about what programs Progress at the Heart supported in 2021, 2022, and 2023.
“Racial disparities in healthcare are a medical emergency. To ensure equitable care, at Duke Neurology, we are building a system to identify and eliminate any variations in treatments provided to patients of different races and ethnicities. With funding through the Progress at the Heart program, we will be able to build the Duke Health Disparities in Neurology Scorecard that will provide easy-to-understand scoring to indicate where we are achieving our mission and where we can improve. Ultimately, the scorecard template will be broadly available with the goal of reducing health disparities nationwide.”
— Andrew Spector, MD, Neurologist, Sleep Medicine Specialist
All awards are paid directly to the requesting organization, and never to an individual. No funding is offered or provided in exchange for endorsing or prescribing Harmony products or for a commitment to continue prescribing Harmony products. In other words, any quid pro quo is strictly prohibited.
Any funding provided by Harmony will be in compliance with all applicable laws, rules, and regulations.
