Progress at the Heart

Progress at the Heart Program

Sleep health disparities are impacted by ethnicity, socioeconomic status, discrimination, geography, social patterns, and access to healthcare as well as other complicating factors.1

2023 Progress at the Heart awards provided funding support for novel initiatives addressing disparities, injustices, and inequities in the rare neurological disease and sleep disorder communities.

For questions or more information, feel free to contact progressattheheart@harmonybiosciences.com.
Stay tuned for our next Progress at the Heart program announcement in 2024!

2023 Program Awards

Now in its third year, Progress at the Heart has funded over $350,000 in awards. Programs currently being supported include:

American Academy of Neurology (AAN)
Health Care Equity Program
The annual Health Care Equity Program enhances 10 neurologists’ knowledge of disparities and promotes more impactful neurology and healthcare policies. Programs include meetings, educational workshop sessions, and individual projects to help close health disparity gaps.

Geisinger Health Foundation
Wake Up and Learn
Wake Up and Learn virtual K-12 educational and surveillance program facilitates a culture shift towards a valuation of sleep as essential for health and removing barriers to timely recognition, diagnosis, and management of sleep disorders in school-aged children. The 2024 program will expand the video curriculum, translate materials into Spanish, and assess impact through interviews with a focus on diverse geographic, ethnic, and gender perspectives.

Rare And Black
The Restful Revolution
The Restful Revolution, an innovative pilot program, will provide support to up to five Historically Black Colleges and Universities in the Washington, DC, and Baltimore area for the 2023-2024 academic school year. Its mission is to educate and empower students to cultivate healthy sleep habits and raise awareness about sleep disorders.

The University of Arizona

  • Platicamos Sueno: Engaging Community Health Workers in Sleep Health at the US-Mexico Border
    This program expands upon existing initiatives at the US-Mexico border through collaboration with the Mariposa Community Health Center and their “Platicamos Salud” program to train community health workers (“promotoras de salud”) to improve access to quality care through panels, in-language educational resources, and training sessions.
  • QuE PASE? (“What Happens?”): Querying Everyday Perceptions About Sleep Experiences
    This project empowers Hispanic and Latino families at the US-Mexico border to address sleep disorder and awareness gaps through a family-based approach. The 20 families already enrolled will have access to new programming focused on recognizing symptoms and two sessions with a psychologist focused on sleep medicine to promote overall health well-being.

The University of Utah
Nuestro Sueno: Focus Groups for the Development of a Culturally-Tailored Sleep Health and CPAP Adherence Intervention for Latino Couples
This project aims to fill the gap of culturally adapted positive airway pressure (PAP) adherence interventions for Latinos through rigorous qualitative research and feedback from patients and community stakeholders. The insights will inform the intervention’s cultural appropriateness and acceptability in the pursuit of future research.

Click to learn more about what programs Progress at the Heart supported in 20212022, and 2023.

“Racial disparities in healthcare are a medical emergency. To ensure equitable care, at Duke Neurology, we are building a system to identify and eliminate any variations in treatments provided to patients of different races and ethnicities. With funding through the Progress at the Heart program, we will be able to build the Duke Health Disparities in Neurology Scorecard that will provide easy-to-understand scoring to indicate where we are achieving our mission and where we can improve. Ultimately, the scorecard template will be broadly available with the goal of reducing health disparities nationwide.”

— Andrew Spector, MD, Neurologist, Sleep Medicine Specialist

All awards are paid directly to the requesting organization, and never to an individual. No funding is offered or provided in exchange for endorsing or prescribing Harmony products or for a commitment to continue prescribing Harmony products. In other words, any quid pro quo is strictly prohibited.

Any funding provided by Harmony will be in compliance with all applicable laws, rules, and regulations.

Reference: 1. Billings ME, Cohen RT, Baldwin CM, et al. Disparities in sleep health and potential intervention models: a focused review. Chest. 2021;159(3):1232-1240.