PLYMOUTH MEETING, PA, December 5, 2018 — Harmony Biosciences, LLC (Harmony) announced today that the company has received four industry awards for its Know Narcolepsy® disease awareness educational campaign and healthcare professional educational video series. The company was selected as an Award of Excellence winner in two categories for Launch Campaign and Physician Education by the 32nd Annual Rx Club Show, and two Honorable Mentions for its Video Programs as part of the PR News Healthcare Communications and Digital Awards.
“We are honored to have been selected and presented with these prestigious awards for our Know Narcolepsy campaign and appreciate the recognition of our company’s efforts to provide valuable resources and education to the narcolepsy community, including healthcare professionals, people living with narcolepsy and their support networks,” said Jeffrey Dierks, Chief Commercial Officer at Harmony. “Our goal is to help advance the science and education of narcolepsy and make a meaningful difference for the narcolepsy community.”
On February 28, 2018, National Rare Disease Awareness Day, Harmony launched Know Narcolepsy, an educational campaign to help increase the understanding of the impact of the disorder, highlight personal stories of people living with narcolepsy and provide a new resource for the community. One core component of the campaign is a website, KnowNarcolepsy.com, which includes information about narcolepsy and cataplexy as well as personal stories and resources for people living with narcolepsy, their support networks and the healthcare professionals who treat the disorder. Other components of the campaign include healthcare professional educational videos, live programs, online resources, and a national survey. Harmony is proud to have partnered with key narcolepsy opinion leaders and narcolepsy and sleep patient advocacy associations in the development of this campaign.
Narcolepsy is a rare, chronic, debilitating neurologic disorder of sleep-wake state instability that impacts up to 200,000 Americans and is primarily characterized by excessive daytime sleepiness, cataplexy, and other manifestations of REM sleep dysregulation, which intrude into wakefulness. In most patients, it is caused by the loss of hypocretin, a neuropeptide in the brain that helps to promote and maintain sleep-wake state stability. This disorder affects men and women equally with typical symptom onset in adolescence or young adulthood; however, it can take up to a decade to be properly diagnosed. Narcolepsy can cause significant burden on patients and their families, affecting their ability to perform routine tasks, limit achievement at school and work, impact social relationships and cause impairment in overall quality of life.
Harmony Biosciences, LLC
Harmony Biosciences, LLC, is a private biopharmaceutical company headquartered in Plymouth Meeting, PA. The company was established in October 2017 with a vision to provide novel treatment options for people living with rare and orphan diseases with an emphasis on central nervous system disorders, starting with patients living with narcolepsy. Harmony Biosciences is committed to advancing the understanding of narcolepsy and providing information and resources to individuals who live with, and healthcare professionals who treat patients with this disorder. For more information on Harmony Biosciences, visit www.harmonybiosciences.com.
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