Harmony’s Patients at the Heart grant program was developed to underscore our ongoing commitment to support the comprehensive needs of people affected by narcolepsy. In its inaugural year, the Patients at the Heart grant was run as a competitive grant opportunity dedicated to funding innovative patient-centric programs. We at Harmony recognize that due to the COVID-19 pandemic, times have changed for everyone, including organizations working to support patients.
To that end, in 2020, Patients at the Heart grants will be awarded to organizations that are working to support and address the challenges of people living with narcolepsy during the COVID-19 pandemic.
Harmony is accepting grant applications beginning April 27, 2020 with no deadline for submission.
Programs that focus on one or more of the following categories:
The grant submission should include detailed information on:
Incomplete proposals will not be considered for review.
Applications will be reviewed members of Harmony’s External Affairs, Medical and Legal teams. Proposals will be evaluated based on a standard set of review criteria, which will include the quality of the application, creativity of the solution and the organization’s infrastructure and past program successes. Funding will be distributed on a rolling basis.
Harmony cannot fund projects that will provide a benefit to Harmony other than the “incidental and tenuous” benefit that Harmony receives in the form of goodwill, name recognition and publicity. We will not consider proposals that include any of the following:
Harmony reserves the right to withdraw this program prior to selecting and awarding grants.
Harmony reserves the right to use grant awardee organizations and winning programs in press materials.
Applications and support materials must be submitted in English.
Can my organizations apply for more than one grant?
Yes. An organization may apply for multiple grants. Each program application must be submitted separately.
Can my organization apply for a grant in collaboration with another organization?
Yes. Collaborative proposals between nonprofit and/or narcolepsy advocacy/community groups and/or academic institutions and/or medical societies are allowed.
Are local and regional programs being considered?
Yes. Local, regional and national programs will all be considered. At this time, the Patients at the Heart Grant will be awarded to programs in the U.S. only.
Is there any guarantee of continuation of funding after a grant is awarded?
No. There is no guarantee an awarded program will receive funding in the future, even upon the continuation of a proposed program and beyond the proposal description.
I have a detailed question about my proposal. Who may I speak to about our program?
Please address all questions regarding your application to firstname.lastname@example.org.
“Our goal is to improve the lives of people living with narcolepsy and their families, and we hope by supporting innovative programs, we can make a positive difference for this community.”
Cate McCanless, Vice President, External Affairs, Harmony Biosciences
From L to R: Cate McCanless, Vice President, External Affairs, Harmony Biosciences; Shannon Burkoth, Narcolepsy & Rare Disease Advocacy Professional; Jeffrey M. Dayno, MD, Executive Vice President & Chief Medical Officer, Harmony Biosciences; Stephanie Wisdo, JD, General Counsel, Harmony Biosciences; Russell Rosenberg, Ph.D, Chief Science Officer and CEO NeuroTrials Research; Chinedu Momah, Senior Director, Head of Medical Science Liaisons, Harmony Biosciences; Rachel Radomski, Director, Patient Advocacy, Harmony Biosciences
“It was an absolute delight to be awarded the funds in 2019 to run a different kind of camp for children with narcolepsy. We're able to move into a full week in the summer. We're going to bring in guests like actors and improvisers and all sorts of other elements because of the grant. It's very exciting for these children and our community.”
Claire Crisp, Executive Director, Wake Up Narcolepsy, 2019 Grant Winner
A review committee comprised of a diverse group of experts including cross-functional Harmony executives, a healthcare professional specializing in sleep disorders medicine and research, and a person living with narcolepsy selected the following as the 2019 winning grant recipients:
Harmony does not provide grants to individuals unless an individual is acting as sponsor investigator of an investigator-sponsored study/research. No grants, sponsorships, or charitable contributions are offered or provided in exchange for endorsing or prescribing Harmony products or for a commitment to continue prescribing Harmony products. In other words, any quid pro quo is strictly prohibited.
Any funding provided by Harmony will be in compliance with all applicable laws, rules, and regulations.