Patients at the Heart Program

Harmony’s Patients at the Heart Grant Program

Harmony’s Patients at the Heart grant program was developed to underscore our ongoing commitment to support the comprehensive needs of people affected by narcolepsy. In its inaugural year, the Patients at the Heart grant was run as a competitive grant opportunity dedicated to funding innovative patient-centric programs. We at Harmony recognize that due to the COVID-19 pandemic, times have changed for everyone, including organizations working to support patients.

To that end, in 2020, Patients at the Heart grants will be awarded to organizations that are working to support and address the challenges of people living with narcolepsy during the COVID-19 pandemic.

Applications for the 2020 PATH program are no longer being accepted. Please see our list of winning programs here. Check back in Q2 2021 for the announcement of our 2021 Patients at the Heart Grant program.

A complete application includes: (1) Application Document and (2) Comprehensive Budget Document. Please submit Patients at the Heart Grant applications to patientsattheheart@harmonybiosciences.com.

View More Program Details

Programs that focus on one or more of the following categories:

  • Support and address the challenges of people living with narcolepsy during the COVID-19 pandemic
  • Address the psychosocial challenges faced by people with narcolepsy and their support networks during the COVID-19 pandemic
  • Improve the overall connectivity of people with narcolepsy during the COVID-19 pandemic

The grant submission should include detailed information on:

  • Program summary
  • Program milestones
  • Evaluation plan - How success will be measured
  • Communication of results
  • Collaboration details, if applicable
  • Financial information/detailed budget for project
  • Include identification of all collaboration partners and clarification of each partner’s roles and responsibilities
  • Applicants must advise if request is for a new program or support for ongoing initiatives

Additional details:

  • No minimum grant amount; maximum grant amount: $25,000
  • Total dollars being awarded: up to $100,000
  • Harmony reserves the right to partially fund grant requests
  • Announcement of grant recipients: Rolling announcements sent directly to grant applicants

Incomplete proposals will not be considered for review.

Applications will be reviewed members of Harmony’s External Affairs, Medical and Legal teams. Proposals will be evaluated based on a standard set of review criteria, which will include the quality of the application, creativity of the solution and the organization’s infrastructure and past program successes. Funding will be distributed on a rolling basis.

Harmony cannot fund projects that will provide a benefit to Harmony other than the “incidental and tenuous” benefit that Harmony receives in the form of goodwill, name recognition and publicity. We will not consider proposals that include any of the following:

  • Programs that reference Harmony products or product candidates, or seek to measure the impacts of Harmony products
  • Individuals or a health care professional’s private practice, including entities associated with or controlled by an individual health care professional or health care professional’s private practice
  • Organizations that discriminate on the basis of age, race, sex, religion, sexual orientation or disability
  • Funding for events or programs that have already occurred
  • Political organizations, campaigns or direct lobbying activities
  • Religious organizations or groups whose activities are primarily sectarian in purpose
  • Programs or proposals that supplement an organization’s income or offset its expense in a manner that benefits, directly or indirectly, a health care provider’s compensation

Harmony reserves the right to withdraw this program prior to selecting and awarding grants.
Harmony reserves the right to use grant awardee organizations and winning programs in press materials.
Applications and support materials must be submitted in English.

Frequently Asked Questions

Can my organizations apply for more than one grant?

Yes. An organization may apply for multiple grants. Each program application must be submitted separately.

Can my organization apply for a grant in collaboration with another organization?

Yes. Collaborative proposals between nonprofit and/or narcolepsy advocacy/community groups and/or academic institutions and/or medical societies are allowed.

Are local and regional programs being considered?

Yes. Local, regional and national programs will all be considered. At this time, the Patients at the Heart Grant will be awarded to programs in the U.S. only.

Is there any guarantee of continuation of funding after a grant is awarded?

No. There is no guarantee an awarded program will receive funding in the future, even upon the continuation of a proposed program and beyond the proposal description.

I have a detailed question about my proposal. Who may I speak to about our program?

Please address all questions regarding your application to patientsattheheart@harmonybiosciences.com.

Our goal is to improve the lives of people living with narcolepsy and their families, and we hope by supporting innovative programs, we can make a positive difference for this community.

Cate McCanless, Vice President, External Affairs, Harmony Biosciences


From L to R: Cate McCanless, Vice President, External Affairs, Harmony Biosciences; Shannon Burkoth, Narcolepsy & Rare Disease Advocacy Professional; Jeffrey M. Dayno, MD, Executive Vice President & Chief Medical Officer, Harmony Biosciences; Stephanie Wisdo, JD, General Counsel, Harmony Biosciences; Russell Rosenberg, Ph.D, Chief Science Officer and CEO NeuroTrials Research; Chinedu Momah, Senior Director, Head of Medical Science Liaisons, Harmony Biosciences; Rachel Radomski, Director, Patient Advocacy, Harmony Biosciences

It was an absolute delight to be awarded the funds in 2019 to run a different kind of camp for children with narcolepsy. We're able to move into a full week in the summer. We're going to bring in guests like actors and improvisers and all sorts of other elements because of the grant. It's very exciting for these children and our community.

Claire Crisp, Executive Director, Wake Up Narcolepsy, 2019 Grant Winner

2019 Winning Programs

A review committee comprised of a diverse group of experts including cross-functional Harmony executives, a healthcare professional specializing in sleep disorders medicine and research, and a person living with narcolepsy selected the following as the 2019 winning grant recipients:

  • Hypersomnia Foundation
    Program: Grant funds will support the “Advancing the Front Line” program, which will educate healthcare providers that see K-12 and college-age patients and provide them with a fundamental awareness of the existence, symptoms and challenges presented by disorders of hypersomnolence.
  • Northwestern University, Department of Neurology, Behavioral Sleep Medicine Lab
    Program: Grant funds will support the design and development of a mobile application for people living with narcolepsy. The application will help users record and track medical data related to their disorder, send notifications to improve adherence to structured schedules, provide cognitive-behavioral techniques to manage symptoms, and more.
  • WakeUp Narcolepsy
    Program: Grant funds will be used to extend a summer camp program for children with narcolepsy to a week-long experience, so children can meet other children facing similar challenges and participate in camp activities under medical supervision.
  • Northwest Narcolepsy Support Group
    Program: Grant funds will ensure meeting resources, educational events and community experiences remain free of charge for the group’s 160 members.

Harmony does not provide grants to individuals unless an individual is acting as sponsor investigator of an investigator-sponsored study/research. No grants, sponsorships, or charitable contributions are offered or provided in exchange for endorsing or prescribing Harmony products or for a commitment to continue prescribing Harmony products. In other words, any quid pro quo is strictly prohibited.

Any funding provided by Harmony will be in compliance with all applicable laws, rules, and regulations.

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