Harmony Biosciences is proud to announce the launch of a new competitive grant for 2021, Progress at the Heart, created to fund innovative programs that address disparities, injustice, and inequities in the rare disease and sleep disorder community.
Sleep health disparities are impacted by race, socioeconomic status, discrimination, geography, social patterns, and access to healthcare as well as other complicating factors. 1 Despite recent findings, tying racial/ethnic and socioeconomic position differences in sleep health, the contribution of sleep deficiency to health disparities remains largely unexplored.2
Harmony Biosciences is now accepting Progress at the Heart grant applications that focus on one or more of the following categories, originally suggested by the Biotechnology Innovation Organization’s BIOEquality Pillars of Change, the Rare Disease Diversity Coalition , and Project Sleep’s Social Justice and Health Disparities Policy Recommendations:
Harmony Biosciences is committed to supporting efforts that aim to counteract the systemic inequity, injustice and unequal treatment of underserved communities impacted by sleep disorders.
People with rare diseases often have limited access to diagnosis, treatment, and care. The disparities can be even greater for people from underrepresented racial, ethnic, or other minority groups in both access to care and underrepresentation in research and clinical trials. Together, these disparities make timely diagnosis and adequate treatment exponentially harder, potentially resulting in serious health consequences.3
Sleep deficiencies, which include insufficient or long sleep duration, poor sleep quality, and irregular timing of sleep, are disproportionately distributed among populations that experience health disparities in the United States.4 Studies have also suggested that racial/ethnic minorities and the socioeconomically disadvantaged may be more likely to experience sleep patterns that are associated with adverse health outcomes. Adverse outcomes of insufficient sleep and/or sleep disorders include weight gain and obesity, cardiovascular disease, diabetes, accidents and injuries, stress, pain, neurocognitive dysfunction, psychiatric symptoms, and mortality.5
The grant submission should include detailed information on:
Incomplete proposals will not be considered for review.
Applications will be reviewed by a cross-functional team of Harmony employees. Proposals will be evaluated based on a standard set of review criteria, which will include the quality of the application, creativity of the solution, and the organization’s infrastructure and past program successes.
Harmony cannot fund projects that will provide a benefit to Harmony other than the “incidental and tenuous” benefit that Harmony receives in the form of goodwill, name recognition, and publicity. We will not consider proposals that include any of the following:
Harmony will not accept applications for Medical Education Grants nor Investigator Sponsored Studies (ISS) through the Progress at the Heart program. Applications for Harmony-sponsored Medical Education Grants can be submitted here and ISS here.
Harmony reserves the right to withdraw this program prior to selecting and awarding grants.
Harmony reserves the right to use grant awardee organizations and winning programs in press materials.
Harmony reserves the right to partially fund grant requests.
Applications and support materials must be submitted in English.
Can I apply for more than one grant?
Yes. An individual or organization may apply for multiple grants. Each program application must be submitted separately.
Can my organization apply for a grant in collaboration with another organization?
Yes. Collaborative proposals between individuals and/or advocacy/community groups and/or academic institutions and/or medical societies are allowed.
Are local and regional programs being considered?
Yes. Local, regional, and national programs will all be considered. At this time, the Progress at the Heart grants will be awarded to programs in the U.S. only.
Is there any guarantee of continuation of funding after a grant is awarded?
No. There is no guarantee an awarded program will receive funding in the future, even upon the continuation of a proposed program and beyond the proposal description.
May I submit a request for an activity that has already occurred?
No, Progress at the Heart does not fund activities that have already occurred, but will consider support for ongoing and existing programs.
I have a question about my proposal. Whom may I speak to about our program?
Please address all questions regarding your application to firstname.lastname@example.org.
References: 1. Billings ME, Cohen RT, Baldwin CM, et al. Disparities in sleep health and potential intervention models: a focused review. Chest. 2021;159(3):1232-1240. 2. Laposky AD, Van Cauter E, Diez-Roux AV. Reducing health disparities: the role of sleep deficiency and sleep disorders. Sleep Med. 2016;18:3-6. 3. #RiseForRare. The Rare Disease Diversity Coalition website. Accessed March 16, 2021. 4. Jackson CL, Walker JR, Brown MK, Das R, Jones NL. A workshop report on the causes and consequences of sleep health disparities. Sleep. 2020;43(8):zsaa037. 5. Grandner MA. Sleep, health, and society. Sleep Med Clin. 2017;12(1):1-22.