Community Resources
When it comes to neurological disease communities, knowledge is powerful. The following educational resources are designed to help empower patients and families, who are at the heart of everything we do.
Narcolepsy
Narcolepsy is a rare, chronic, debilitating neurological disorder of sleep-wake state instability, affecting approximately 170,000 Americans. Learn more about the patient experience of living with narcolepsy, including its impact on daily living and more.
Idiopathic Hypersomnia
Idiopathic hypersomnia (IH) is a rare and debilitating sleep disorder characterized by excessive daytime sleepiness (EDS) despite sufficient or even long sleep time. Learn more about the experiences of people living with IH and how it can significantly disrupt daily functioning.
Prader-Willi Syndrome
Prader-Willi syndrome (PWS) is a rare genetic neurological disorder that affects multiple systems in the body, largely impacting appetite, development, behavior, and sleep. Learn more about the common features of this condition and its impact on people living with PWS.
Dravet Syndrome
Dravet syndrome (DS) is a rare and severe form of epilepsy that typically begins in infancy and can cause developmental, cognitive, and neurological impairments. Get more information and learn the symptoms and causes of this rare, but severe form of epilepsy.
Lennox-Gastaut Syndrome
Lennox-Gastaut syndrome (LGS) is a rare and severe form of epilepsy characterized by treatment-resistant seizures and developmental delays. Onset of LGS typically begins in early childhood between ages 3 and 5. Learn more about the signs, symptoms, and causes of LGS.
